World PH Day - 5th May 2017
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World PH Day 5th May 2017 - PHNA
PHNA celebrated life, each other, our carers, family and friends and our beloved PH Angels. This year we had a fabulous Mad Hatter, Alice in Wonderland themed Tea Party. Hosted by PHNA sponsor The Colombian Cafe and proudly sponsored by PHNA member Jackie Zele and family in loving memory of daughter Petra. We handed out our PHNA PSA about PH and we held the 60 second straw test challenge (courtesy of phaware.global). It was a big eye opener for a lot of people who were attending as they got a small glimpse into how it is to breathe for a person living with pulmonary hypertension. We had a fabulous time relaxing and enjoying the food and each others company. It was a welcome break from a constant disease and a lovely way to honour each other and our Angels.
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Pulmonary Hypertension Association - USA 2017
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phaware.global - 2017
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From Podcasts to the Pictures and the amazing phaware365 phone app, PH awareness reaches new heights in 2017
Movie-goers will be seeing pulmonary hypertension public service announcements at selected theaters in California, Nevada and Washington, beginning today, which is World PH Day. The Phaware Global Association and On the Wall Theater Advertising arranged for the I’m Aware That I’m Rare PSAs to run in 80 Galaxy theaters and IMAX screens throughout the month of May. The objective is to raise awareness of PH. The PSAs, which last between 15 and 30 seconds, are already airing on Fox and other television networks. The phaware association and the ad agency believe they are an innovative way to engage and educate audiences about PH before a movie starts. Phaware’s goal is to ensure that one day no PH patient will go undiagnosed or misdiagnosed. Its main focus is educating and providing resources to patients, healthcare professionals, donors and supporters nationwide. Everyone can join the #phaware campaign by sharing news about the PSAs during #WorldPHDay. They can also stay connected the remaining 364 days of the year through phaware’s smartphone apps or by subscribing to Pulmonary Hypertension News‘ free newsletter. |
Creating awareness can help increase the rate of early PH diagnoses – and that can mean the difference between life and death. Galaxy Theaters operate in the western United States, where a lot of people have PH. Pulmonary Hypertension News has been running Phaware’s “I’m Aware That I’m Rare” podcast series since April 3. Each podcast, which runs three times a week, is between three and 15 minutes long, and the site includes a complete audio transcript.
The podcasts feature the voices of PH patients, caregivers, specialists, doctors, nurses and patients with other rare diseases. The content spans the experiences of those affected by PH. The idea behind running them is to cultivate a sense of community and sharing, and raise awareness. You can listen to all the podcasts below or download the “Aware That I’m Rare” podcast mobile app to listen from your smart phone. |
Pulmonary Hypertension Association Canada - 2017
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Pulmonary Hypertension Europe - 2017
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World PH Day - 5th May 2016
Pulmonary Hypertension Public Service Announcement
Slide show for 5th May World PH Day 2016 from Western Australia and abroad - enjoy!
Slide show for 5th May World PH Day 2016 from Western Australia and abroad - enjoy!
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Pulmonary Hypertension Western Australia are in full swing for the 2016 world PH day on the 5th May! This year we have a public service announcement (PSA) going out across the state on the medical channel. This message will reach multiple medical centres and doctor's surgeries across Western Australia, reaching over 40,000.00 viewers over a two week period. After World PH Day this year we will start to release all our new resources and reveal the finished projects we have been working on so stay tuned! Enjoy the slide show of all the activities carried out around the world and share yours with us too if you want them posted to our site. Check out our Facebook page to see more in detail. PHWA team
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Pulmonary Hypertension Association Canada Releases Pulmonary Hypertension Awareness Video for World PH Day 2016 Event date: Thursday May 5th, 2016
This 5 min. 17 sec. educational video aims to raise public awareness of the symptoms of pulmonary hypertension and the impacts of this rare, potentially fatal, disease. The video features pulmonary hypertension patients and caregivers from British Columbia, Canada who explain how PH impacts their lives on a daily basis. The video also explains the main symptoms of pulmonary hypertension and encourages viewers experiencing such symptoms to speak to their doctor about PH. The video was produced in partnership with Vancouver film cooperative Cineworks Independent Filmmakers Society and filmmaker Tyler Gamsby (Creek Water Media). For more information visit PHA Canada |
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