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The Men's Toolkit from ConnectGroups Association

This resource is a direct result of a need identified by ConnectGroups members. It has been developed with the aim of assisting Support Groups and service providers with tips about how to effectively engage with men. The overarching intent is to provide men-focused best practice protocols and procedures.

Download an electronic copy by clicking the book cover below. For further information about the resource, or to order a hard copy version, please contact the ConnectGroups office on (08) 9364 6909 or email info@connectgroups.org.au.

"Effectively Engaging with Men" Is now available, please contact them directly 
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What HE Won't Tell You (About His PH)

(July 13, 2016 Guest post by Doug Taylor, leader of Midlands SC Palmetto PHriends support group), PH patient and PHA Board Member -- after a recent discussion with another male patient and attending the men’s medically led session at PHA’s 2016 conference, Doug identified some issues that some men may face after a PH diagnosis. While pulmonary arterial hypertension affects more women than men, men may feel that they face their own unique challenges.

If the pulmonary hypertension patient is a man, there may be some things he isn’t telling you.  Regardless of who he is – your husband, your boyfriend, your son, your father, your brother, your nephew, your uncle – he may feel that he needs to keep some things buried.  Whether he is single, married, divorced, or widowed, gay or straight, young, middle-aged, or older, here are some things that men with PH may experience: 
  • His diagnosis makes him confused and angry.
  • He wants to still be “the strong one” in the family.
  • He doesn’t want to be a burden on anyone.
  • He doesn’t like to be called “sick” or “disabled.”
  • He gets angry, sad, and discouraged when he can’t do the things he used to do.
  • He wonders what he will do now that he is not the bread winner.
  • He wonders what he will do now that he is on disability.
  • He wonders how to make ends meet without his income.
  • He wonders how he can afford his medications.
  • He wants to see the kids/grandkids/nieces/nephews grow up.
  • He wants to spend active quality time with you and the rest of the family but is sometimes just too tired.
  • His PH meds sometimes make him feel worse.
  • Taking RevatioTM (sildenafil) or AdcircaTM (tadalafil) may help stimulate him sexually, but it isn’t always enough to help him finish the deed, and that can be frustrating both physically and mentally.
  • He wants to know “how to fix it.”
  • He is sometimes afraid.

​Connect with others living with PH at myPHA, an online community for people dealing with PH, at www.myphassociation.org.
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ACKNOWLEDGEMENT: "The Network" would like to acknowledge Aboriginal and Torres Strait Islander peoples as Australia's First People and Traditional Custodians. We value their culture, identities, and continuing connection to country, waters, kin and community. We pay our respects to Elders, past and present, and are committed to making a positive contribution to the well-being of Aboriginal and Torres Strait Islander young people, by working on providing services that are welcoming, safe, culturally appropriate and inclusive.  PHNA is committed to embracing diversity and eliminating all forms of discrimination in the provision of health services. PHNA welcomes all people irrespective of ethnicity, lifestyle choice, faith, sexual orientation and gender identity. 

DISCLAIMER: The information provided on the PHNA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified medical professionals who are familiar with your individual needs. PHNA does not endorse or recommend any commercial products or services. We provide information only with responsibility being on the part of the user. PHNA does not accept any responsibility for any websites advertised if the user incurs spam/virus or other. All our information is shared in good faith and without prejudice.  

PHNA proudly share educational information and resources with you from various sectors and access other information from many other reputable PH & associated organisations. All logo's, photographs, organisation produced resources are subject to copyright and cannot be used without prior written permission from PHNA. Some images belong to PHNA, or other organisations, some are from google and we give full credit to the authors/artist/designers.  The PHNA website is hosted through Weebly and designed and maintained by PHNA. All rights reserved 2019.
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